“I didn’t want to upset my loved ones, but I couldn’t carry this alone.”
~ Julie Flygare
Gathering Your Tribe
Reversing autoimmune disease through diet and lifestyle is something no one can do for us. We’re the ones who decide the food we eat, what time we go to bed, how hard we push ourselves, whether we take time to de-stress. Yet, we don’t walk this world alone. We’re surrounded by friends, family and co-workers who are powerful influences on our lives. It’s a lot easier to stay on the healing path if we’re supported by those people, rather than thwarted by them. So, how do we get that support?
- Value Your Health Enough to Ask for What You Need: When it comes to reversing autoimmune disease, it’s time to put yourself first. This is an unnatural feeling for a lot of people. We’re used to taking care of others, often at the expense of ourselves. With autoimmune disease, our bodies are in crisis, and we need to do everything we can to heal ourselves. This is a time for self-love and self-advocacy, not self-sacrifice.
- Start With Your Home: If at all possible, have your household kitchen match your healing diet. Whether it’s a paleo or primal template, the autoimmune protocol, or a version of the Wahls Diet, remove the temptations by removing the foods you can’t eat. You may think this is unreasonable to ask of your family, but it’s not. Autoimmune disease has a powerful impact on the family, as well as the person who is sick. Your healing benefits everyone. Dr. Terry Wahls is currently doing clinical trials on the effectiveness of the Wahls Paleo Diet to reverse multiple sclerosis. The people who live in households that contain only Wahls-compliant foods, succeed at a much higher rate than those who don’t.
- Out of Sight Out of Mind: This doesn’t mean everyone in your family has to eat identically to you. Family members can eat as they wish outside of your presence; just ask that they avoid eating “forbidden” foods in front of you. Out of sight, out of mind, really does work. Simultaneously, your loved ones can enjoy the freedom of a wider diet without derailing yours.
- Eat Delicious Food: All you have to do is scroll through the recipes in AIP Recipe Roundtable Archives to see that the paleo template is anything but boring. It’s a natural human desire to want to enjoy our food, and just because we have autoimmune disease doesn’t mean we can’t. I eat amazing food every single day. Sometimes it’s a simple meal, sometimes it’s complex, and sometimes it’s a treat. I don’t let myself feel deprived. Also, the more delicious the paleo meals are that we serve our family, the less they’ll object to the change in menu.
- Healthy Compromises: While it’s preferable for your household to match your diet, I know that not everyone agrees to do this. So, how do you navigate sharing a kitchen safely? If your household won’t go 100% paleo, at the very least, ask for gluten-free, especially if you have celiac disease. The chance for gluten cross-contamination in a shared kitchen is extremely high, and that’s a risk you don’t want to take. After that, compartmentalize the kitchen. If most of your family is on-board and just one person isn’t, maybe they can keep their foods in a special cabinet in the kitchen, one you will simply avoid. If the reverse is true, then store your food on certain shelves in the fridge, freezer and cabinets, so you don’t have to reach past the takeout containers to get your ingredients for breakfast. Lastly, be honest about the foods that are most tempting to you, and ask that those be kept out of the house. For me, that would be pizza, not because it’s so delicious. In fact, I seem to remember it feeling like a bowling ball in my gut after eating it, and then I’d be hungry again an hour later. Even so, it has a strong scent that I find hard to resist, and it’s associated with a lifetime of memories. If someone walked into my house with pizza, I would have to leave, to keep myself from eating it. Figure out what those foods are for you, and ask that those be eaten outside of the house instead.
- Navigating Change with Friends: That’s your household, but what about your friends? These are the people you’ve likely socialized with over food, so a change in diet actually changes the nature of your friendship. You may not be comfortable eating in restaurants any more, and “happy hour” might be anything but happy if can no longer have the peanuts and beer. The first step is to have an honest conversation. Explain how your autoimmune disease makes you feel, and how this diet has the potential to make you feel infinitely better. If your friends love you, they’ll want you to heal. Tell them that their support means a lot. Try hard not to proselytize; often we’re a mirror to the people in our lives, whether we intend to be or not, and they think we’re judging their choices. Explain that this is about you, not them, and you aren’t going to try to change them. Lastly, come up with new ways to spend time together. Go for walks, meet for tea, go to a play, attend an art show, or invite them to your house for a meal, a movie, or a game of cards. There are lots of ways to spend time with those we love, and not be surrounded by foods we can’t eat.
- Let Your Healing Speak for You: If people aren’t supportive in the beginning, they often become supportive when they see the improvement in your health. Let’s face it, people are skeptical at first of this whole paleo idea. While it’s logical that diet and lifestyle have a huge impact on our health, that’s not what the TV commercials are selling, and culturally it’s not how we were raised. When I told my mother my plans to reverse rheumatoid arthritis with diet, she actually laughed out loud. She thought I was crazy. But when she saw that it worked, she became 100% supportive. Now, when I visit her, we cook AIP dinners for the whole family. The same thing can happen with your family and friends, so if your improvements aren’t visible, be sure to talk about them with the people in your life.
- Be Consistent: People will only take your diet as seriously as you do. If someone offers you an inflammatory food and says, “Here, have a bite. A little bit won’t hurt you,” and you eat it, they are going to keep tempting you. Why? Because you’ve just shown by your actions that your diet is flexible. This is the hard part: walking the healing path when there are people in your life who aren’t yet 100% supportive. Gather all the self-discipline at your disposal to say no. If you can avoid these people, do, and spend time with those who are encouraging your choices instead.
- Making New Friends: If there’s no one in your life who is supportive, it’s essential that you find that support elsewhere. Thankfully, there is a global community at your fingertips. If you’re on Facebook, there are a number of paleo and AIP groups: Autoimmune Paleo Recipes, AIP Support, Wahls Protocol Group and The Paleo Approach Community. Join some and make some new friends. If you’re not on Facebook, check out the website: The Paleo Mom Community. Lastly, if you live in one of the larger cities, there are local meet-up groups where you can find people who eat just like you. Here’s a list of paleo groups, and here’s a list of AIP groups.
- The Workplace: Bringing your own food for lunch takes care of your daily needs, but occasionally there are work dinners or meetings with extra challenges. For the dinners, see if you can help organize them, picking a restaurant or catering company you trust. If you’re going to be tempted by donuts at a meeting, keep some paleo-friendly snacks on hand just for you. Ideally, your work should be about your contributions rather than your diet. Still, people might have questions. Often, it’s easier to keep the answers general: “I’m on a prescribed diet for health reasons.” Only people truly interested will ask more questions, and it’s up to you how much you decide to share.
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A version of this post originally appeared in my column in Paleo Magazine.
Credit: image at top of page from Scott Maxwell.